Abstract
People with intellectual and developmental disabilities (IDD) are medically underserved, thereby exhibiting both acute and chronic health disadvantages. Many medical providers - physicians in particular - do not have a working knowledge of the unique medical needs of patients with IDD. In addition to this IDD knowledge gap, the interactions of healthcare professionals with such patients sometimes reflect the wider society’s discomfort and intolerance toward people with IDD. This study uses experiential reflections from nurses and direct service providers who commonly treat patients with IDD to promote the enhancement of medical care to this vulnerable population. As frontline health workers, their insights illuminate current gaps and improvement opportunities concerning advocacy, treatment plans, and the delivery of effective care for patients with IDD.
Keywords: Nurses; Direct Service Providers; Physicians; Clinicians; Disabilities; Intellectual Disability; Developmental Disability; IDD; Qualitative
References
- Bartkowski JP., et al. “Evaluating the impact of a clinician improvement program for treating patients with intellectual and developmental disabilities: The challenging case of Mississippi”. Healthcare 1 (2018): 3.
- DETECT (Developmental Evaluation, Training and Educational Consultative Team) of Mississippi. (2021).
- Bartkowski JP., et al. “Intellectual and developmental disabilities among adults”. Clinician Education Product Developed by Bartkowski & Associates Research Team for DETECT of Mississippi (2015).
- Bartkowski JP., et al. “Serious mental illness among individuals with IDD”. Clinician Education Product Developed by Bartkowski & Associates Research Team for DETECT of Mississippi (2015).
- Bartkowski JP., et al. “Pediatric intellectual and developmental disabilities”. Clinician Education Product Developed by Bartkowski & Associates Research Team for DETECT of Mississippi (2016).
- Bruder MB., et al. “Brief report: The medical care of adults with autism spectrum disorders-Identifying the needs”. Journal of Autism andDevelopmental Disorders 42 (2012): 2498-2504.
- Havercamp SM., et al. “Preparing tomorrow’s doctors to care for patients with autism spectrum disorder”. Intellectual and Developmental Disabilities 54 (2016): 202-216.
- Mantry D., et al. “The prevalence and incidence of mental ill-health in adults with Down syndrome”. Journal of Intellectual Disability Research 52 (2007): 141-155.
- Melville CA., et al. “Enhancing primary health care services for adults with intellectual disabilities”. Journal of Intellectual Disability Research 49 (2005): 190-198.
- Robertson J., et al. “Systematic reviews of the health or health care of people with intellectual disabilities: A systematic review to identify gaps in the evidence base”. Journal of Applied Research in Intellectual Disabilities 28 (2015): 455-523.
- Rothstein WG and Hannum S. “Profession and gender in relationships between advanced practice nurses and physicians”. Journal of Professional Nursing 23 (2007): 235-240.
- Ryan TA and Scior K. “Medical students’ attitudes towards health care for people with intellectual disabilities: A qualitative study”. Journal of Applied Research in Intellectual Disabilities 29 (2015): 508-518.
- Connolly T., et al. “The effects of symptom recognition and diagnostic labels on public beliefs, emotional reactions, and stigma associated with intellectual disability”. American Journal on Intellectual and Developmental Disabilities 118 (2013): 211-223.
- Siedlecki S and Hixson E. “Relationships between nurses and physicians matter”. Online Journal of Issues in Nursing 20 (2015): 6.
- Trollor JN., et al. “Intellectual disability health content within medical curriculum: An audit of what our future doctors are taught”. BMC Medical Education 16 (2016): 105.
- Turygin NC., et al. “Co-occurring disorder clusters in adults with mild and moderate intellectual disability in residential treatment settings”. Research in Developmental Disabilities 35 (2014): 3156-3161.
- Walsh KK., et al. “Caring for people with developmental disabilities: Survey of nurses about their education and experience”. Intellectual and Developmental Disabilities 38 (2000): 33-41.
- Appelgren M., et al. “Nurses’ experiences of caring for patients with intellectual developmental disorders: A systematic review using a meta-ethnographic approach”. BMC Nursing 17 (2018): 51.
- Auberry K. “Intellectual and developmental disability nursing: Current challenges in the USA”. Nursing: Research and Review 8 (2018): 23-28.
- Wilson NJ., et al. “Nurses working in intellectual disability‐specific settings talk about the uniqueness of their role: A qualitative study”. Journal of Advanced Nursing 75 (2019): 812-822.
- Advocacy Resource Center. American Medical Association (2021).
- Bartkowski JP and Grettenberger SE. The arc of faith-based initiatives: Religion's changing role in welfare service provision. Cham: Springer (2018).
PubMed Indexed Article
EC Pharmacology and Toxicology
LC-UV-MS and MS/MS Characterize Glutathione Reactivity with Different Isomers (2,2' and 2,4' vs. 4,4') of Methylene Diphenyl-Diisocyanate.
PMID: 31143884 [PubMed]
PMCID: PMC6536005
EC Pharmacology and Toxicology
Alzheimer's Pathogenesis, Metal-Mediated Redox Stress, and Potential Nanotheranostics.
PMID: 31565701 [PubMed]
PMCID: PMC6764777
EC Neurology
Differences in Rate of Cognitive Decline and Caregiver Burden between Alzheimer's Disease and Vascular Dementia: a Retrospective Study.
PMID: 27747317 [PubMed]
PMCID: PMC5065347
EC Pharmacology and Toxicology
Will Blockchain Technology Transform Healthcare and Biomedical Sciences?
PMID: 31460519 [PubMed]
PMCID: PMC6711478
EC Pharmacology and Toxicology
Is it a Prime Time for AI-powered Virtual Drug Screening?
PMID: 30215059 [PubMed]
PMCID: PMC6133253
EC Psychology and Psychiatry
Analysis of Evidence for the Combination of Pro-dopamine Regulator (KB220PAM) and Naltrexone to Prevent Opioid Use Disorder Relapse.
PMID: 30417173 [PubMed]
PMCID: PMC6226033
EC Anaesthesia
Arrest Under Anesthesia - What was the Culprit? A Case Report.
PMID: 30264037 [PubMed]
PMCID: PMC6155992
EC Orthopaedics
Distraction Implantation. A New Technique in Total Joint Arthroplasty and Direct Skeletal Attachment.
PMID: 30198026 [PubMed]
PMCID: PMC6124505
EC Pulmonology and Respiratory Medicine
Prevalence and factors associated with self-reported chronic obstructive pulmonary disease among adults aged 40-79: the National Health and Nutrition Examination Survey (NHANES) 2007-2012.
PMID: 30294723 [PubMed]
PMCID: PMC6169793
EC Dental Science
Important Dental Fiber-Reinforced Composite Molding Compound Breakthroughs
PMID: 29285526 [PubMed]
PMCID: PMC5743211
EC Microbiology
Prevalence of Intestinal Parasites Among HIV Infected and HIV Uninfected Patients Treated at the 1o De Maio Health Centre in Maputo, Mozambique
PMID: 29911204 [PubMed]
PMCID: PMC5999047
EC Microbiology
Macrophages and the Viral Dissemination Super Highway
PMID: 26949751 [PubMed]
PMCID: PMC4774560
EC Microbiology
The Microbiome, Antibiotics, and Health of the Pediatric Population.
PMID: 27390782 [PubMed]
PMCID: PMC4933318
EC Microbiology
Reactive Oxygen Species in HIV Infection
PMID: 28580453 [PubMed]
PMCID: PMC5450819
EC Microbiology
A Review of the CD4 T Cell Contribution to Lung Infection, Inflammation and Repair with a Focus on Wheeze and Asthma in the Pediatric Population
PMID: 26280024 [PubMed]
PMCID: PMC4533840
EC Neurology
Identifying Key Symptoms Differentiating Myalgic Encephalomyelitis and Chronic Fatigue Syndrome from Multiple Sclerosis
PMID: 28066845 [PubMed]
PMCID: PMC5214344
EC Pharmacology and Toxicology
Paradigm Shift is the Normal State of Pharmacology
PMID: 28936490 [PubMed]
PMCID: PMC5604476
EC Neurology
Examining those Meeting IOM Criteria Versus IOM Plus Fibromyalgia
PMID: 28713879 [PubMed]
PMCID: PMC5510658
EC Neurology
Unilateral Frontosphenoid Craniosynostosis: Case Report and a Review of the Literature
PMID: 28133641 [PubMed]
PMCID: PMC5267489
EC Ophthalmology
OCT-Angiography for Non-Invasive Monitoring of Neuronal and Vascular Structure in Mouse Retina: Implication for Characterization of Retinal Neurovascular Coupling
PMID: 29333536 [PubMed]
PMCID: PMC5766278
EC Neurology
Longer Duration of Downslope Treadmill Walking Induces Depression of H-Reflexes Measured during Standing and Walking.
PMID: 31032493 [PubMed]
PMCID: PMC6483108
EC Microbiology
Onchocerciasis in Mozambique: An Unknown Condition for Health Professionals.
PMID: 30957099 [PubMed]
PMCID: PMC6448571
EC Nutrition
Food Insecurity among Households with and without Podoconiosis in East and West Gojjam, Ethiopia.
PMID: 30101228 [PubMed]
PMCID: PMC6086333
EC Ophthalmology
REVIEW. +2 to +3 D. Reading Glasses to Prevent Myopia.
PMID: 31080964 [PubMed]
PMCID: PMC6508883
EC Gynaecology
Biomechanical Mapping of the Female Pelvic Floor: Uterine Prolapse Versus Normal Conditions.
PMID: 31093608 [PubMed]
PMCID: PMC6513001
EC Dental Science
Fiber-Reinforced Composites: A Breakthrough in Practical Clinical Applications with Advanced Wear Resistance for Dental Materials.
PMID: 31552397 [PubMed]
PMCID: PMC6758937
EC Microbiology
Neurocysticercosis in Child Bearing Women: An Overlooked Condition in Mozambique and a Potentially Missed Diagnosis in Women Presenting with Eclampsia.
PMID: 31681909 [PubMed]
PMCID: PMC6824723
EC Microbiology
Molecular Detection of Leptospira spp. in Rodents Trapped in the Mozambique Island City, Nampula Province, Mozambique.
PMID: 31681910 [PubMed]
PMCID: PMC6824726
EC Neurology
Endoplasmic Reticulum-Mitochondrial Cross-Talk in Neurodegenerative and Eye Diseases.
PMID: 31528859 [PubMed]
PMCID: PMC6746603
EC Psychology and Psychiatry
Can Chronic Consumption of Caffeine by Increasing D2/D3 Receptors Offer Benefit to Carriers of the DRD2 A1 Allele in Cocaine Abuse?
PMID: 31276119 [PubMed]
PMCID: PMC6604646
EC Anaesthesia
Real Time Locating Systems and sustainability of Perioperative Efficiency of Anesthesiologists.
PMID: 31406965 [PubMed]
PMCID: PMC6690616
EC Pharmacology and Toxicology
A Pilot STEM Curriculum Designed to Teach High School Students Concepts in Biochemical Engineering and Pharmacology.
PMID: 31517314 [PubMed]
PMCID: PMC6741290
EC Pharmacology and Toxicology
Toxic Mechanisms Underlying Motor Activity Changes Induced by a Mixture of Lead, Arsenic and Manganese.
PMID: 31633124 [PubMed]
PMCID: PMC6800226
EC Neurology
Research Volunteers' Attitudes Toward Chronic Fatigue Syndrome and Myalgic Encephalomyelitis.
PMID: 29662969 [PubMed]
PMCID: PMC5898812
EC Pharmacology and Toxicology
Hyperbaric Oxygen Therapy for Alzheimer's Disease.
PMID: 30215058 [PubMed]
PMCID: PMC6133268
News and Events
March Issue Release
We always feel pleasure to share our updates with you all. Here, notifying you that we have successfully released the March issue of respective journals and the latest articles can be viewed on the current issue pages.
Submission Deadline for Upcoming Issue
ECronicon delightfully welcomes all the authors around the globe for effective collaboration with an article submission for the upcoming issue of respective journals. Submissions are accepted on/before April 03, 2023.
Certificate of Publication
ECronicon honors with a "Publication Certificate" to the corresponding author by including the names of co-authors as a token of appreciation for publishing the work with our respective journals.
Best Article of the Issue
Editors of respective journals will always be very much interested in electing one Best Article after each issue release. The authors of the selected article will be honored with a "Best Article of the Issue" certificate.
Certifying for Review
ECronicon certifies the Editors for their first review done towards the assigned article of the respective journals.
Latest Articles
The latest articles will be updated immediately on the articles in press page of the respective journals.